Between 5% and 15% of people living with a dementia have a rare dementia. This can bring with it a unique and complex set of challenges, including difficulties with language, vision, movement and behaviour. However, there is a widespread lack of understanding and a shortage in the resources needed to support those affected.
Rare Dementia Support (RDS) is a world-leading, UK-based service led by the UCL Dementia Research Centre (DRC). We aim to empower, guide and inform people living with a rare dementia diagnosis and those who care about them. Find out more about the 7 rare dementias we support.
Tags: dementia, online support, group support